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Showing posts from August, 2009

Just finding the groove.

We went last Friday and got things started for SSI and Disability. We will see how smoothly that goes. Pete has been having some better days. And the bad days are more okay than bad so I am thankful for that. We have another appointment on Tuesday the 18th. I think he is supposed to have a CT scan that day and then visit with the neurosurgeon. I am hoping for good news like that we won't have to do the shunt, but I am prepared for anything. I was sitting in Sunday school yesterday not thinking much of it just wanting it to be over, I have never really enjoyed Sunday School, lol. We were talking about Joseph Smith's time in the Liberty Jail (such a contradiction-Liberty Jail). Anyway we were talking about the prayer and the Lord's answer to that prayer (D&C 121 I think) and Sister Young pointed out one thing that the Lord told Joseph. He called him "my son" and that just hit me so hard. It was like this powerful calm or peace or answer for me and everything I

Trial by fire

I know at least that they want to treat Pete for 18 months. We still have the neurosurgeon today so we will see how that goes. We need to go back to the Infectious Disease Clinic in two weeks. On my mind are the following things: 1) They want to give Pete another MRI, but here is the rub. Their financial advocate can only discount the price and then have us give a fifty percent down payment at time of service. He estimated this on the phone for me at $400. I don't have that. So I need to figure out my way around all this to get Pete the care he needs. These stupid people were told we were broke and no insurance or jobs. I am hoping this is still the right thing to do when everything told us to do it. I am with Pete and starting to doubt but will work through it. 2) I need a job. The doctor told Pete he would likely not be able to work for the next 18 months. So I need to find a job. Simple enough if not complicated by the fact that Pete needs to be in SLC for treatments or checkups